A very special day. Everyone with Nico!

Casvi Villaviciosa > Casvi Solidarity > A very special day. Everyone with Nico!
Carrera Solidaria en Casvi International American School

Today has been a very special day for Nico and his family. Students and teachers have participated in the great sporting event of this 2021 for our Educational Community and for infantile neuroaxonal dystrophy: the I Casvi Solidarity Race. The aim was to give visibility to all those who have a disease considered “rare”.

And Nico is in this situation.  He is five years old and is a cheerful boy with a great desire to enjoy life. But he has a serious illness: infantile neuroaxonal dystrophy.

For this reason, those who were his classmates in higher stages during his time at Casvi, had it clear from the beginning. Students, now in the 2nd Diploma Programme (International Baccalaureate), decided to organise a very special day for Nico. A day in which not only his case, but also the important work being done by the INADcure Foundation: Team Spain and New Zealand, would be made known.

We can see it in this gallery of images.

Timeline of this very special day for Nico

From 9 in the morning until 3 in the afternoon, the students of the 2nd Diploma Programme of the International Private School Eurocolegio Casvi, have offered different informative talks about Nico’s illness and situation. They were attended by all the students of Casvi (from the First Cycle of Pre-School). Immediately afterwards, all these students participated in different races in the facilities of our school. All of them, of course, with their green wristband. Nico’s favourite colour. Bracelets that the little ones wanted to decorate, demonstrating their incredible creativity.

Some teachers even wanted to go even further by taking on another challenge, even more complicated, in honour of Nico. To cover the distance of 10 kilometres without resting for a single second.

In short, a successful event in which important values such as solidarity, empathy and sensitivity to help those most in need were highlighted.

What is infantile neuraxonal dystrophy?

Infantile neuroaxonal dystrophy is a pervasive developmental disorder that primarily affects the nervous system. Children with infantile neuroaxonal dystrophy usually have no symptoms at birth, but between 6 and 18 months of age they begin to experience delays in acquiring new motor and intellectual skills, such as crawling or starting to talk. Over time, they even lose previously acquired skills.

Nico’s family tells us about it in this video:

Fundación INADcure: Team Spain and New Zealand

Due to Nico’s illness, Infantile Neuroaxonal Dystrophy (INAD), his family decided to create this Foundation. With it they wanted to start a fundraising campaign.

This is very important for them and for other children who suffer from this horrible disease. Until now, there was no centralised effort to raise the funds needed for scientific research to try to find a treatment and a cure.

It is the only one in the world dedicated exclusively to families affected by INAD.